December 17, 2018
Area(s) of Interest: Chronic Diseases Patient Care Professional Development & Education
On July 1, 2018, the California Department of Public Health (CDPH) launched the California Parkinson’s Disease Registry (CDPR), a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease.
M.D.s, D.O.s, P.A.s, and N.P.s who diagnose or treat Parkinson’s disease patients are required to report. The first deadline for data submission is March 29, 2019, for cases encountered during the first quarter the law was in effect (July 1 to September 30, 2018). Details on the reporting obligation can be found in the Implementation Guide, version 3.0.
To provide an overview of the registry and help mandated reporters understand how to submit data to CPDR, CDPH has posted an on-demand webinar (webinar password: CPDRdec2018), free to all interested parties. The webinar covers both manual data entry via secure web portal and automated electronic interface.
The CDPR data collected will be used to measure the incidence and prevalence of Parkinson’s disease, with the goal of better understanding of this disease to improve the lives of Parkinson’s patients.
If you are a provider and need assistance submitting Parkinson's disease case information to the registry, please contact CDPH at CPDRhelp@cdph.ca.gov or (916) 731-2500.