October 29, 2018
Area(s) of Interest: Public Health Professional Development & Education
On July 1, 2018, the California Department of Public Health (CDPH) launched the California Parkinson’s Disease Registry, a statewide population-based registry that will be used to measure the incidence and prevalence of Parkinson's disease.
MD’s, DO’s, PA’s, and NP’s who diagnose or treat Parkinson’s disease patients are required to report. The first deadline for data submission is March 29, 2019, for cases encountered during the first quarter the law was in effect (July 1 to September 30, 2018). Details on the reporting obligation can be found in the Implementation Guide, version 3.0.
To date, 432 Parkinson's disease cases have been submitted to CPDR. The data collected will be used to measure the incidence and prevalence of Parkinson’s disease. CPDR considers California’s large and diverse population ideal for expanding the understanding of this disease to improve the lives of Parkinson’s patients.
CDPH will be hosting a free webinar on Friday, November 16 at noon to provide an overview of the registry and help mandated reporters understand how to submit data to CPDR. The webinar will cover both manual data entry via secure web portal and automated electronic interface. To register for the webinar, click here.
If you are a provider and need assistance submitting Parkinson's disease case information to the registry, please contact CDPH at CPDRhelp@cdph.ca.gov or (916) 731-2500.